The usual warnings continue to apply. Parts One and Two here and here.
April 22, 2010, Earth Day and M’s birthday. Twenty-four hours have passed since the doctor put his words out there. I’m still hot with anger and grief, still breaking into sobs at the slightest twinge of thought. I’ve examined M repeatedly for signs that the doctor saw something I’d missed.
Our whole family has traveled a difficult road to buy her the safety and time she needs to make what she can of her outraged life. Over the years, I’ve spent thousands of hours lying beside her, searching her body with my eyes, questioning it with my fingertips as I’ve struggled to discover causes €”and relief €”for her episodes of suffering. With my voice €”singing, asking, offering, praying €”I’ve reached into her pain and distress and felt the arms of her trouble wrap around me. Intense involvement and careful inquiry has been the only way to approach understanding and to help her. It’s the only way to reach many of these children. Continue reading “What I Thought and Did Earth Day, Part Three”